Make Your Mark on World CP Day 2020!

All around the world, people and communities have had to adapt to big changes caused by COVID-19. People with cerebral palsy have mastered dealing with change, breaking down barriers, and coming up with creative solutions their whole lives. This year, since we can’t hold physical events around the globe, join the CP community in MAKE YOUR MARK! Think of some of the ways you (or someone you know) have created something, set and reached a goal, or come up with a new way to participate in an activity that felt inaccessible at first. When you share this story, you’ll Make Your Mark. 

On October 6 share a post, video, or story showing:

  • What you accomplished 
  • How you made it happen
  • How it affected you, and how your achievement or solution can impact or influence others with cerebral palsy

Make sure you tag @worldcpday and use the hasgtags #WorldCPDay and #CPMakeYourMark

Climb for Kids!

Saskia Kramer (the Program Director for BOOST Conductive Education run by UCP North Bay) along with Michael Wong and Colorado Reed summited Mt. Everest to raise money and awareness for Cerebral Palsy!
They climbed and descended 29,029 feet in a single day in Redwood Regional Park in Oakland, CA!

Their goal is to raise $2,902.90 (the height of Mt. Everest) to support the incredible work of BOOST Conductive Education program run by United Cerebral Palsy of North Bay, who was not been able to do their annual fundraiser (90% of their annual donations) due to COVID-19.

They surpassed their goal and raised over $5000! Congratulations and thank you for this wonderful effort!

The BOOST program serves children and young adults with Cerebral Palsy (quadriplegia, hemiplegia, diplegia, ataxia, athetosis), spina bifida, paraplegia, Multiplex Sclerosis, Parkinson’s, stroke, head injuries, and other brain-based motor delays.

Learn more about this incredible organization here: https://ucpnb.org/boost-conductive-education/

Boost Camp conquers distant learning

We decided to check in and see how things are going with some our favorite students in Boost Camp! Distant learning is hard for everyone, especially children with mobile disabilities, but Saskia Kramer has done an amazing job at lining up an enriching program for her students, allowing them to grow and succeed while at home!

“We have been in distance learning since March 16th. We have daily contact with our students over FaceTime and Zoom. The kids have their own individualized daily routine/schedule and are encouraged to take part in at least 4 classes a day (out of about 8 to choose from) on top of extracurricular activities that are posted on the Google Classroom. We have movement program sessions that focus on mobility, math, language arts, science, dance, fine motor, arts & crafts, lunch groups, read alouds and afternoon meetings.
It has been eye opening in terms of what technology is out there and it is absolutely a different way of teaching. We definitely miss being in a single classroom and seeing each other in person, nothing can ever replace that. While distance learning is much harder on parents, interestingly, we have experienced that they all became even more engaged in their child’s education then before. They have done an amazing job being there for their kids and working full time. The bond between siblings is also much stronger and the everyday stress of getting to school, then to therapy is now replaced with a slower paced daily routine. I am proud of my students, they have adjusted very well to this “new world” and they keep surprising us with their abilities.
We are getting ready for our BOOST Summer Intensive that will be held over Zoom for four weeks. We are excited to see each other, connect and continue to work towards a life without limits. We really hope to be back to in person instruction soon (fingers crossed) and to be able hug our kids again soon. 

Thanks to Boost Camp and Saskia, for letting us know how these wonderful students are doing during lockdown. We hope to see their smiling faces soon too!

A wonderful end to Giving Tuesday!

At UCP of the North Bay, they celebrated #givingtuesday and collected funds to get tablets for their staff to help support distant learning.

The #GivingTuesdayNow Campaign raised more than $18,000 for the purchase of Amazon Fire Tablets to be given to participants to stay connected during COIVD-19 Shelter In Place.
As part of that celebration Domenic Bianco shared his original song, “Puzzle Piece,” to remind us all during these times that we are all just pieces in one big global puzzle.

#GivingTuesdayNow, Domenic Bianco "Puzzle Piece"

Friday, June 5th, we celebrated the successful end to our #GivingTuesdayNow Campaign that raised more than $18,000 for the purchase of Amazon.com Fire Tablets to be given to our participants to stay connected during COIVD-19 Shelter In Place.As part of that celebration, Domenic Bianco shared his original song, "Puzzle Piece," to remind us all during these times that we are all just pieces in one big global puzzle. The SoulShake http://ucpnb.org

Posted by United Cerebral Palsy of the North Bay on Monday, 15 June 2020

#GivingTuesday

Support our friends at UCP of the North Bay on #GivingTuesday !

More about UCPNB’s campaign:

#GivingTuesdayNow is a global day of giving and unity that will take place on May 5, 2020, as an emergency response to the unprecedented need caused by COVID-19.

Please join United Cerebral Palsy of the North Bay as we come together to create a wave of generosity, citizen engagement, action from business and philanthropy, and support for communities around the world.

Staying connected is a key ingredient to navigating these unusual times. While many of our participants, staff and their families and friends have embraced technology and are able to “see” each other through platforms such as “Zoom,” there are some who go without. Our goal is to get the technology into everyone’s hands to be able to stay connected. To date, UCP of the North Bay has conducted hundreds of online classes, meetings, and “check-ins” with a large percentage of our network across four counties in the North Bay, but there are still some who cannot connect.

UCP of the North Bay’s #GivingTuesdayNow campaign aims to purchase a minimum of 300 Amazon Fire Tablets to distribute within our network to help our community stay connected! These tablets can be purchased for just $60 each.

Our organization has decided to extend the #GivingTuesdayNow campaign from May 5 to May 31st.  For each $60 gift we will use to purchase an Amazon Fire Tablet for our network, you will receive one “Donation With a Chance”entry into our raffle for a “Post-Pandemic Getaway.” The drawing will take place June 5th, live and online.

The #PostPandemicGetaway is a trip valued at approximately $2,000 and includes airfare, lodging and spending money!

Please help by making your $60 donation(s) today and spreading the word to friends and family to do the same!

March away from screens!

Join UP Academy’s March Away from Screens Month!

“Families and students expressed a wide range of reactions and emotions, from crying to wanting to throw out the family TV! We each have a different relationship to technology.”

Here is a blog from one family who went on a screen fast. 

Tweens spend less time outside than prisoners

That’s less than one hour a dayThese shocking stats were from a survey of 2,000 parents of 5 to 12-year-olds. The survey – part of Percil’s Dirt is Good campaign – revealed the following:

  • Kids spend twice as long playing on screens as they do playing outside.
  • 3-in-4 kids spend less than 60 minutes playing outside each day.
  • 1-in-5 kids don’t play outside at all on a typical day.
  • 3-in-4 parents said their kids often refuse to play games without some form of technology.
  • 2-in-3 parents say their kids spend less time outside than they did as children.

Sources: https://habyts.com/kids-and-screen-time-five-facts/

UCPNB Bike Camp!


Winter Bike Camp 2020 was a huge success over at our friends’s United Cerebral Palsy of the North Bay! We love seeing all the smiling faces of the campers!

More than 23 campers attended who were at all levels of experience riding. Thank you to all the volunteers, Sonoma State students, staff and supportive families who cheered on the bikers throughout the weekend! Stay in touch with UCP of the North Bay to find about Bike Camp in June!