Summer 2015 Newsletter

shapeimage_1 SUMMER 2015 NEWSLETTER

For many years “experts” considered a diagnosis of Cerebral Palsy to be a losing battle. Enter Peninsula Outreach Programs. For over twenty years it has been our mission to help fund meaningful programs that will improve the quality of life for children and young adults living with C.P and other neuromotor disabilities.

What does “quality of life” look like when you or someone you love has been diagnosed with Cerebral Palsy? For many families, this has meant a unique struggle, one that requires working harder than most everyone you know. Thanks to the programs supported by POPSKIDS, it can also mean hope and a very particular brand of joy that comes in that moment of achieving a new personal best. POPSKIDS’ are battling for the Win!

One UCPNB/ BOOST Camp Mom tells the story ……

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For POPKIDS “Winning” looks like taking your premature twins home for the first time thanks in part, to funding toward an expanded, state of art, neo-natal care unit….

May 8, 2014 – Mr. Jon Guy, CFRE for St. Rose Dominican (Dignity Health) in Henderson, NV presented POPSKIDS and Ursula and Alan Miller with a dedication plaque for our support in the creation of a “nesting suite” to promote family bonding at the new Level II and III Neonatal Intensive Care Units (NICUs).

The modern, comfortable Level III NICU features 26 NICU bays with the most advanced technology for monitoring sick and/or premature newborns while a caring, compassionate staff provides a full range of neonatal treatment for medically fragile infants.

Recent advances in neonatal care provide significant aid to prevent or minimize negative long term effects associated with premature births, improving physical functioning that may impact later development, including the development of healthy neuromotor skills. https://www.dignityhealth.org/las-vegas/services/labor-and-delivery/nicus

June 17, 2015 – A “win” means the opportunity to celebrate the 20th Anniversary of our partnership with Executive Vice President and General Manger, Jack Brennan and the gang at Southern Wine & Spirits of Northern California www.southernwine.com/OfficesNationwide/California/CorporateSocialResponsibility.

This sell out event included many long standing benefit sponsors along with a number of exciting new sponsors. A silent and a live auction were included for the first time, adding to the amazing success of the benefit. SW&S truly out did themselves. This year’s proceeds are expected to more than double the previous level of support to benefit POPKIDS.

Several of our former students returned to make the evening complete. Joe Pegueros started as one of
POPSKIDS first students in our Conductive Education program.
image2Joe is now a young man and an apparent master of sports trivia. “Winning” looks like Joe coming back to visit his old friends at SW&S, including a meet and greet with Warriors’ icon, Gary St. Jean and 49er Football’s legendary exec., Carmen Policy. Joe, now twenty-four years old, poignantly asked the full house not to forget about the older kids and young adults in need of continued programs.

 

 

Image: Joe and his parents with Ursula Miller at a SW&S event in 2002

Creighton Rochlin was three years old when he started at C.E. Boost Camp. Unable to walk, he was confined to a wheelchair. He is now fourteen years old, walking with the assistance of canes and attending

image3mainstream school. Despite his own determined accomplishments, Creighton humbly explained to the benefit audience that his take away win from Boost Camp was actually something that happened to his parents. “My Boost Camp experience allowed them to change their perspective about what I was cable of achieving.

Creighton is an avid history buff who aspires to study his way through the ancient cities of Europe.

Image: A young Creighton pictured with Jack Brennan

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July 30, 2015 – Sinya does a “winning” hula dace from her wheelchair on graduation day at BOOST Camp’s summer Conductive Education program http://www.boostcamp.org/.

Sinya will also be recognized for her achievements during Boost Camp at a special UCPNB awards ceremony held annually in August. POPSKIDS is a proud sponsor of the UCPNB “Life Without Limits” Recreation Academy http://www.ucpnb.org/recreation/life-without-limits-awards-academy/life-without-limits-recreation-academy.

 

“Winning” can be bittersweet….

Dan and Nicki Miller have two young boys with C.P. Over the course of the 5 week Boost Camp program, other families may have witnessed their child experience a moment of “wow.” Nicki didn’t notice any particularly dramatic changes for her sons, Carson and Chase. What she seemed to notice might simplybe described as hope; a new sense of optimism coming alive with each small, consistent movement made day after day, allowing each of her sons the opportunity to work like “gangbusters” towards their own personal best.

Then, all too soon, Summer Boost Camp is over and it is back to the traditional Special Ed. While traditional classes can offer their own value to children with C.P., repetitive movement therapy such as that received through Conductive Education is unlikely to be part of the curriculum. A child faced with this current reality, may spend the majority of the school year “safely” secured to their chair.

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For POPSKIDs, our partners and all of the families just like the Millers, “winning” looks exactly like our call to establish a year round Northern California School for Conductive Education. The hard work and determination of these children inspires us to move forward to make this dream a reality.

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CONGRATULATIONS TO BOOST CAMP ~ CLASS OF 2015

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